Michelle Kish- A Girl Suffering with Rare Genetic Disorder!

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Bharatwa Editor

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Michelle Kish is a 2o-year-old girl who was born with a rare genetic disorder generally known as Hallerman-Streiff Syndrome. This Syndrome include vision impairments, hearing deficit, chronic pulmonary lung disease etc. She is dependent on a feeding tube to eat.


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She is a pretty smiling young lady and belongs to Illinois in the United States. She require medical assistance during whole night and also special nurse who travels with her to school and often visits the hospital when it is necessary. This genetic disorder stops the growth rate and individual does not grow normally.


 

Recently she spent 4 days in the pediatric intensive care unit (PICU) at Ann and Robert H. Lurie Children's hospital because of serious intestinal infection called Clostridium Difficile. This infection causes dehydration and stomach pain. This is the third time in her life to have this dangerious illness.


Michelle is now recovering at home with her family under 24-hour medical care. When she is healthy she is a very happy and active teenager who enjoys her every moment of life. She also likes playing computer games and watching her great collection of DVD's.


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This disorder is so rare that at the time of her birth there were only 250 known cases around the world. Symptoms include an excellent round, child facial function with unusual growth. Michelle only comes up to just above her sister’s waist. Now this optimistic lady is finding a boyfriend - ideally a long-haired man who could always remain in touch with her emotions.


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